Hi, my name is Sophia. I am 10 years old and have been diagnosed with a rare condition.
Motto: Look on the Bright Side
Champion Teammate: Talaya Frazier
High School Team: Dripping Springs Cheer
Sophia was diagnosed at 4 years old with congenital Ullrich Muscular Dystrophy. This is a rare progressive disease that causes muscle wasting. We soon learned that she would be confined to a wheelchair, require a feeding tube and respiratory support, surgery to correct scoliosis and full time aid to help with all her daily activities.
There wasn’t a cure, but we knew that anything was possible. We decided to believe in miracles and work towards that. As long as it couldn’t hurt Sophia we were willing to try it. We made it an adventure and started with a stem cell treatment, and immediately started seeing positive changes in Sophia. Instead of getting weaker, she started getting stronger, and her pain had also improved. Since then, we have added serial casting, physical therapy, chiropractic care, swimming, horse therapy, massage, hyperbaric oxygen chamber, electro-stimulation biofeedback therapy, vitamin infusions and dietary changes.
In spite of all the challenges that Sophia has had, she is an incredibly happy and loving girl. She is selfless, compassionate and has a tender heart that seeks peace all around. Strong, determined, and hard working, Sophia is an inspiration to us all. She was born on Valentine’s day and truly is all about LOVE.
|Justin Romero||09/17/2018||$40.00||Sophia, you keep your head up and enjoy life! Smile and laugh as much as you can. You are amazing. You are awesome. You are worthy. You are a blessing to everyone! Praying for you daily!||Viola Blythe||09/16/2018||$30.00||A donation to Sophia in honor of Talaya's birthday with much love and blessings. Zoni||Talaya Frazier||09/02/2018||$126.20||Sophia- I am so honored to be your Champion Teammate. I look forward to the smiles we will share in our journey ahead as teammates.|