Hi, my name is George. I am 9 years old and have been diagnosed with a rare condition.
Motto: My Soul is Always Singing
Champion Teammate: Allison Miller
High School Team: Lake Travis Theatre
From the time George was able to speak, he complained that his legs and ankles hurt. By the time he was 18 months old, he would complain of pain three to five times per week, and at times, refuse to walk. We were reassured by both a pediatrician and an orthopedist that this was just "growing pains". At 5 years old, the pain was so intense that he refused to walk which led to some x-rays that showed all was "normal".
George's pain continued over the next several years, flaring before illnesses, as we continued to search for answers. After 8 years of looking for a reason behind the pain and demanding more testing, an orthopedist working with a rheumatologist did full body bone scans and two critical blood tests. George's blood tests were both positive. His ANA was high indicating inflammation in his body and his HLA-B27 was positive, a potential genetic marker for juvenile idiopathic arthritis (JIA) with potential ankylosing spondylitis.
JIA is an autoimmune and inflammatory disease leading to joint swelling, stiffness, and pain that does not go away. Ankylosing spondylitis is an inflammatory arthritis affecting the joints of the spine and the pelvis. George is a bright, enthusiastic boy, still enduring many rounds of blood testing, scans, and treatments, looking for more answers. Despite George’s set backs his soul is always singing!
|Anonymous Friend||10/02/2018||$1,000.00||George, hope your run was AWESOME! We did a little "family jog" on Sunday too in honor of you.||Kate Austin||09/30/2018||$50.00||I love you so much George! ❤️❤️❤️||Noelle Linzy||09/28/2018||$20.00||Good luck with the run! I work with your Dad. :)||Kerry Duffy||09/18/2018||$25.00||The Karlssons||09/17/2018||$200.00||Our best wishes to you George!||Karin and Eric Van Oort||09/11/2018||$250.00||Go George! We will see you at the marathon||Neil & Mary Ellen Horn||09/09/2018||$200.00||Colleen & Patrick Doyle||09/08/2018||$50.00||Thinking of you, George!||Meghan Upton||09/08/2018||$50.00||Eileen and Bob Siock||09/04/2018||$25.00||George are in our thoughts and prayers.||Laurie Heronemus||09/04/2018||$30.00||We love you George! You are always a bright shining star! And a wonderful and kind person to have in our lives. Love, The Hero's||Molly and Joe Middleton||09/01/2018||$50.00||So proud of our grandson George ,and all the other children ,Keep singing.||Pat / Kathy McGlynn||08/31/2018||$100.00||A successful run for George and all the other children. We are thinking of you and pray your soul is always singing!||Sharon Horn||08/30/2018||$50.00||George and family, You are in my thoughts. Hoping that your run is successful and invigorating for you and all the others involved.Love you, Aunt Sharon||Ryan Leatherbury||08/29/2018||$100.00||Kali, Reese and I will also be running for you George!||Patrick Scott||08/29/2018||$250.00||We will run in spirit. :) Love yous Pat, Mary, Colin & Declan||John/Linda Brzoska||08/28/2018||$200.00||God bless our grandson, George & the rest of the children & the rest of the children and their families.||Maura Horn||08/27/2018||$150.00||I'll be running on the 30th in honor of George and the other kids.|